Understanding grief and bereavement after loss
Drickus Maartens • July 20, 2020
Sudden loss in the midst of the current pandemic may be particularly traumatic
The loss of a loved one is an intensely painful and devastating experience, and may often feel unreal. While grief and bereavement are experienced differently by everyone, there are some common aspects that may be helpful to understand, and to help one to eventually cope better with loss.
“It is not only the passing of a loved one that leads to feelings of loss. People also experience grief in other events, for example when a relationship ends, or one loses a job or possessions such as one’s house as a result of financial difficulties. These instances have become increasingly common during the current COVID-19 pandemic,” says Megan Hosking, psychiatric intake clinician at Akeso mental health facilities.
Stages of grief and bereavement
“The most widely recognised stages of grief were first described by Dr Elizabeth Kübler-Ross, who was a Swiss-American psychiatrist. While these stages are often presented as a linear process, it is most important to realise that they are not meant to create neat and tidy packages for emotions, and do not necessarily follow in this order for everyone.
“Individuals experience each of the stages of grief and bereavement differently, and the length of time that each stage may last also varies from one individual to the next. A person who grieves may also move backwards and forwards between the stages of the grieving process,” she explains.
1. Denial
The first emotion many people experience following a loss is a state of shock and denial. Things may not feel real, make any sense, and the reality of the loss will not yet have set in. Denial may result in a person carrying on with life as though the loss has not happened and not feel the emotions associated with the loss.
2. Anger
Anger can often feel endless; one may feel angry at others – the deceased person, one’s family, the circumstances, the health system, doctors, their employer other people, and even a higher power. Feelings of regret and guilt (whether perceived or real) often manifest as anger against others who one thinks may have contributed to, or caused, their loss.
3. Bargaining
One may try to make arrangements, promises or bargain with others or a higher power to try and ‘reverse’ the loss, minimise one’s own sense of being harmed. This often happens when relationships end and one tries to get their partner ‘back’.
4. Depression
This stage is often where reality starts to set in and a person moves their attention to the present situation. One may feel intense sadness, want to withdraw from others, or feel like doing nothing. Depression as a stage of grief is not the same as depression as a diagnosable mental health illness. A state of depression following the loss of a loved one or other significant loss is a normal and appropriate response, and often with time, will transition into a space of acceptance.
5. Acceptance
Acceptance does not mean that everything suddenly feels right again, or that you are completely healed or ‘okay’ with the loss you have suffered. This stage is more about realising that life without your loved one or in your changed situation is the way things are going to be, and learning to live with that – even though it will still hurt, and you may still feel intense sadness or feel the loss daily.
Sudden loss
According to Hosking losing a loved one suddenly, as may be the case with the current COVID-19 pandemic, can be very traumatic and is also often experienced differently to a loss following a long-term illness or an expected loss.
“There is no time to prepare for the loss, and often one may not have their full support system around. There may be lots of questions about the loss, the circumstances leading up to it, and what happened, and feelings of shock may last longer,” Hosking says.
It is not uncommon following a sudden loss to experience strong emotional and physical responses, which can include:
- Shock symptoms such as shaking, inability to move, stomach aches and headaches, exhaustion, and feeling on edge. These will usually pass after a few days; if they don’t, one should seek professional assistance.
- Insomnia and nightmares.
- Feeling alone and that no one understands you and what you are going through.
- Anger and regret.
“Following a loss, feelings of sadness, desperation, guilt, anger, loneliness, difficulty sleeping, mood changes, appetite and energy changes are normal. However, if any of these emotions feel overwhelming or persist for a long time, then seeking professional help is a wise option,” Hosking advises.
Supporting a loved one
“If someone close to you has lost a loved one – partner, parent, child or friend – it can be challenging to know how to support them and care for them,” adds Sandy Lewis, head of therapeutic services at Akeso.
“When talking about loss, one needs to be very mindful of one's words, as it is a sensitive situation for all involved, and emotions are heightened. The conversation and support largely depend on the person experiencing the loss, your relationship with them, and their current circumstances,” she notes.
When talking to someone who has experienced a loss, saying the following may be helpful to express support:
- “I am so sorry for your loss”
- “I don’t know how you feel, but I am here to help in any way I can”
- “You and your loved one are in my thoughts and prayers”
- “I am just a phone call away” or “I am up early or late if you need anything”
- “My favourite memory of your loved one is…”
It is important to avoid saying things like:
- “At least he/she lived a long life, many people die young” (if an elderly person has passed)
- “Only the good die young” (for a young person)
- “He/she is in a better place”
- “There is a reason for everything”
- “I know how you feel”
- “Just be strong”
- “It’s for the best” (if the person who has passed had suffered seriously)
“Be supportive but do not try to fix the loss or the situation,” Lewis advises. “Don’t tell people what to do or feel – even if you have experienced loss, remember that your experience is not the same as theirs. Recognise the loss and what it means to the person, and don’t put a time-frame on how long they can grieve.”
“Other ways of showing support include making sure the person is safe, that their basic needs such as food are met, helping with their other responsibilities such as answering messages or paying bills, sending them a virtual hug if a real one is not possible in this time. However, involve them in decision-making where possible,” Lewis concludes.

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With Rare Disease Day on the 28th of February 2025, the Rare Diseases Access Initiative (RDAI) is driving an evolution of the country’s healthcare, through innovative strategies to better care for over 4.2million people living with an estimated 7000 rare diseases. “As our healthcare system faces significant changes in the years ahead, it is vital that we also advocate for people living with rare diseases in South Africa, especially those with limited healthcare access,” said Kelly du Plessis, CEO of Rare Diseases South Africa (RDSA), a member of RDAI. “As part of our ongoing research and awareness efforts, RDAI has conducted an initial analysis of the incidence and prevalence of rare diseases within the country.” This research will assist in improving access to healthcare, policy development, and patient advocacy, while giving critical insight into the challenges faced by patients. “According to research, some rare diseases affect fewer than 1 in a million people, while others, such as Down syndrome, cystic fibrosis, and haemophilia, have a more recognisable prevalence,” says Dr. Helen Malherbe, RDAI lead researcher on rare disease prevalence data. “Many conditions are undetected, underdiagnosed or misdiagnosed, with too many having no information available about them at all.” The RDAI was formed in 2019 to promote a more favourable environment for those impacted by rare diseases in South Africa. Participants include Ampath, the Board of Healthcare Funders (BHF), Discovery Health, Genetic Counsellors South Africa (SASHG), the Government Employees Medical Scheme (GEMS), Health Funders Association (HFA), Medihelp, Medscheme, North-West University (NWU), Rare Diseases South Africa (RDSA), the South African Medical Association (SAMA) and The South African Medical Technology Industry Association (SAMED). The Council for Medical Schemes (CMS) participates as an observer. In the same year, Rare Disease International signed a memorandum of understanding with the World Health Organisation leading to an international rare disease policy framework. In 2021, the United Nations General Assembly moved to adopt a resolution recognising 300 million people living with rare diseases worldwide. “A general lack of awareness and delayed diagnosis remain major hurdles for those affected by rare diseases. Policymakers and healthcare stakeholders need to prioritise access to treatment, diagnosis, and support for rare disease patients,” says Bada Pharasi, CEO of IPASA, “Through this initiative, working collaboratively with stakeholders at every level of the healthcare supply chain, we can bring real and meaningful change to those affected, including family members and care givers, through smart and efficient strategies.” The globally agreed definition of a rare disease is any medical condition with a specific pattern of clinical signs, symptoms, and findings that affects fewer than or equal to 1 in 2000 persons in a population. “Most are genetic, and some are inherited and passed down in families,” Malherbe says. “Some affect only the patient’s genetic recipe, while others may be acquired during life due to infection, trauma, or environmental effects. For many, the cause is still unknown. “These conditions mainly affect children, as they are largely incurable and many are life-threatening. Some require specialised and co-ordinated care, some have limited and expensive treatment options, while others have no information or effective treatments at all,” she adds. The RDAI is calling for a patient-centred care model built on equitable access, transparency and efficiency. Naturally, this model calls for the open participation of patients, the healthcare industry, health professionals, and the Government. “The most critical elements are robust diagnosis standards, improved access to treatment, data collection and management, co-ordination of care, measurement of outcomes and ongoing collaborative research,” du Plessis says. “We need to establish rare disease advisory committees, map gaps and opportunities, establish system requirements, create a roadmap and plan a phased implementation with clear timelines.” The RDAI states that these policy development steps would be a start in quantifying the disease burden and defining standards of care. This would be followed by building and strengthening the capacity to facilitate appropriate diagnosis, treatment, continuity and data monitoring. 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About RDAI The Rare Diseases Access Initiative (RDAI) is dedicated to advocating for improved healthcare access, policy development, and patient support for those affected by rare diseases in South Africa. The initiative brings together key healthcare stakeholders, including pharmaceutical associations, funders, genetic specialists, and patient advocacy groups, to drive impactful change. About RDSA Founded in 2013, Rare Diseases South Africa (RDSA) is a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders experience greater recognition, support, improved health service and better overall quality of life. Started out of personal need following the diagnosis of organisation founder, Kelly du Plessis' son, it became evident that there was a lack of awareness and support for rare diseases in general in South Africa. About IPASA The Innovative Pharmaceutical Association South Africa (IPASA) is a voluntary trade association representing 24 leading pharmaceutical companies committed to research, development, and innovation. Our mission is to drive healthcare advancement by advocating for policies that improve patient access to safe, high-quality, and affordable medicines.